Feeds:
Posts
Comments

In a singularly rare gift of academia…I recently started my year-long sabbatical.  As is my tendency, I have so many goals for this year that it will be a miracle if I accomplish 1/2 of them.

All my goals could be melted down into one single goal: to evolve my work in using the arts and humanities to improve the quality of life of individuals and communities.

TimeSlips will launch a new website on Sept. 24th that will bring creative storytelling to families with dementia wherever they live.  My dream is to replace some of the fear and sorrow that consumes families with dementia with play, joy, and connection.

The three partner organizations involved with the Penelope Project will work together to create a curriculum for an exciting 3-day summer institute to be held in Milwaukee in June 2012.  The power of person-centered care, partnership building, and artistic collaboration are at the core of the institute, which invites attendees to bring and develop ideas for their own projects.   We will also continue to work on the program evaluation and documentation of the project – including a documentary film and possibly a multi-platform “book”.

Finally, I’m READING, LISTENING, OBSERVING and LEARNING.  For a whole year.  What a huge, huge treat.

I’m reading a variety of angles that cross cut my overarching goal.  Leadership theory/practice.  Aging and Intergenerational programming theories/models.  Models of cultural development that have specific goals to improve the health of individuals and communities.

My first read?  A galley proof of the yet to be published Everyone Leads by Paul Schmitz, CEO of Public Allies.  The book shares the stories of individual Allies and the organization’s development of its core values.  I’m struck by how similar the language is to that used in “culture change” in long term care.  Paul writes “At the heart of an asset-based approach are two fundamental principles:  that every member of a community, no exceptions, has gifts and talents that can be contributed to the community, and that communities are places where all people are able to contribute their gifts and talents.”  134.

So much of the writing in the distributed, relational, servant (pick your word) leadership world can be applied to long term care.  Because we so thoroughly see long term care settings as a place of MEDICAL care, and not one of DAILY LIVING…we have failed in large part to consider them (or improve them) as COMMUNITIES.

Many many people write about how seeing a person as a patient ignores their needs as a human being.  It also ignores the community in which that human being lives, which can be a nurturing resource for that person.

 

Here’s a well done article from today’s (July 13th, 2011) Chicago Tribune on something that those of us in the field of theatre know – Improvisation is funny and fun, demands that you hone all your senses, and draws you closer to those you practice it with.

Improvisation has been the base of the TimeSlips storytelling method since 1996, and Karen Stobbe’s In-themoment.com for a decade.  I’m so thankful others are catching on!

YES!  AND…

 

 

I rattled off a whole bunch of references this a.m. and thought that I would provide the links here…

1) John Michael Kohler Art Center in Sheboygan just opened Hiding Places: Memory in the Arts and the show (it’s amazing)… and will be up until Dec. 31st.  Tell your friends!

2) The TimeSlips Creative storytelling project is launching a new website that enables folks to read, write, and share creative stories.  The official launch is Sept. 24th, but it will be soft launched this summer.  In the mean time, just check out the current site, which is also very cool!

3) The UWM Center on Age & Community (which I direct) is hosting a Summer Institute NEXT June 24-28th (2012).  Spots will be limited so you can contact the Center today to get more info.  Visit their website for more info. 

4) The Penelope Project has its own blog that is full of fascinating stories from the entire project.

5) Gary Glazner does the Alzheimer’s Poetry Project

6) The StoryCorps Memory Loss Initiative can be found at their website, www.storycorps.net.

Ask me questions if I forgot something… :)

Margaret Gullette’s opinion piece “Our Irrational Fear of Forgetting” in the Sunday New York Times on May 21st, 2011 strikes a provocative chord.  That’s one of the many things that Margaret is exceedingly good at – striking chords.  She’s also a painstaking researcher, an eloquent writer, a keen observer of culture, and a tenacious, on-message town crier.

The piece asks a simple question.  “Is the prospect of the disease [Alzheimer's] so horrifying that it should prompt someone to consider suicide?”

It’s a hard question to answer in a short opinion piece. But her goal here isn’t to fully answer – but to drag out into the bright light of day the question that hides underneath every “senior moment,” every crossword puzzle, every advertisement for a “neurobic” computer game, every wrinkle cream, every mention of someone “still” having their mind, even every ad campaign of the Alzheimer’s Association.

“Is the prospect of the disease so horrifying that it should prompt someone to consider suicide?”

In the light of day, the question compels other questions.  Like “how much of the horror is the financial ruin most families face with the disease?” “How much of the horror is our poorly trained and inadequate care system?” “How much of the horror is fear that keeps us from embracing people with Alzheimer’s with supportive care?”  “How much of the horror can we actually change even if we don’t have a medical cure?”

I’m thankful she mentioned my work in the piece – and the excellent Making an Exit by Elinor Fuchs.  The letters to the editor the following week suggest that the reference to “forget memory, try imagination” wasn’t quite understood for its full intention.

Here is a letter I drafted in response – I doubt it’ll get printed, but I thought I’d share it here anyway.

LETTER TO NYT’s
The pain of experiencing Alzheimer’s, from the inside or the outside, cannot be covered with a band-aid of pithy phrases. Families and friends try everything to reignite the spark behind the eyes of a loved one wrestling with dementia. But when language is crumbling, “remember when?” and “remember me?” cannot make a person whole again. In fact, trying to rebuild memory can reinforce the pain of loss. When I say “Forget memory, try imagination” is not a pithy band-aid over an unhealable hurt.  It is a guidepost, drawing family and friends to find each other again by simply removing the expectation to “remember.”  The open, poetic language of improvisational storytelling, movement, music, or visual art can reconnect us in deeply meaningful ways.  15 years of research, practice, and the glowing faces of people with dementia who rediscover their ability to make meaning again are powerful proof that creativity and imagination are largely untapped reserves of strength when dementia strikes.

Anne Basting is the author of Forget Memory: Creating better lives for people with dementia, 2009, and founder of the TimeSlips creative storytelling project for people with dementia.

Come to Sheboygan, WI between June and December 2011 and experience an incredibly thought provoking, museum-wide exhibit that explores the meaning and role of memory in our lives at the John Michael Kohler Art Center. 

The curators have broken the exhibit into four intriguing sections:  From Memory (artists who make their art from memory); Holding Memory (artists who make objects to hold memory); Forget Memory (artists working with and through memory loss); and Shared Memory (artists using and spinning collective memory).

The exhibit features several artists directly engaging the Sheboygan area community in the making of their work, including Pat Graney, David Greenberger, and Celeste Nelms.

Wrestling with the meaning and role of memory in our lives can help us to understand our fears of its loss – and to imagine how investing in a “cultural cure” (raising awareness and reducing stigma) can go a long way toward relieving the symptoms of memory-related diseases and conditions.

I had the great privilege of consulting on the exhibit and writing an essay for the catalog, which promises to be an invaluable tool for continuing the discussion beyond the exhibit.  And TimeSlips is also featured as an “artist in residence” along with photographer Celeste Nelms, who taught local residents to take photos that contain a provocative narrative.  Art Center docents are trained in the TimeSlips method and will be facilitating stories from the photos on exhibit in the “Community Gallery.”

Book your trip Milwaukee today!  Sheboygan is just a quick hour’s drive north on highway 43!

Forget Memory, Try Imagination!  is the tag line the TimeSlips creative storytelling uses to encourage people to leave behind (at least partially) the fears and stigma of memory loss.  The imagination is a powerful communication tool that enables people to reach each other across the communication divides of cognitive disabilities like memory loss and dementia.

TimeSlips creative storytelling is a simple, improvisational storytelling method that can be used to connect people across that divide.  TimeSlips has been around since 1998, training family and professional caregivers through in-person workshops.

This year, TimeSlips is launching a playful online training and a new interactive website that will enable people to tell stories with friends/family virtually or in person.  The official launch for both will be September 24th at the National Adult Day Services Association conference in Milwaukee, WI.  But look for the “soft launch” in July.

www.timeslips.org

TimeSlips is housed at the UWM Center on Age & Community.

What a lovely couple of days in NYC with the folks at MOMA and the really electric group of visionary arts educators and aging services providers they drew together for the invitation only, one-day conference “Mapping Perceptions.”

MOMA has used its arts world icon status as a beacon for the field – encouraging museums and cultural institutions across the world to offer top-flight educational and art-making programming to families with dementia.

Monday night I had the great fortune to be on a panel with much honored medical researcher Dr. Eric Kandel, prolific author David Shenk, and senior curator in the Dept. of Architecture and Design Paola Antonelli, talking about Imagination and the Changing Mind.  We veered a bit off track into a discussion of science/art…but it was a thrill to blend all our views and disciplines toward a goal of encouraging continued growth/learning across the life course.

On Tuesday, the program featured Richard Taylor, a panel including Richard, myself, and Peter Whitehouse talking about dementia (we missed Meg Sewell!), and a fascinating panel looking at LEARNING in the aging brain.  Yes – it IS possible.

The afternoon session sent us into the galleries to look at the astounding collection (I fell in love with Paul Klee allll over again…), and break out groups that had us envisioning the future of this “movement”, and of the substance/promise of our work.

I was proud of the Wisconsin contingent – and happy to meet so many new folks doing amazing work, including my delightful lunch with Clive Parkinson.

Looking forward to being back at MOMA May 3/4 for the joint meeting of Grantmakers in the Arts and Grantmakers in Aging hosted by NCCA.

Some new research by Lorraine Phillips, RN, PHD, shows the positive impact of TimeSlips creative storytelling!  Read more…

 

There’s a conversation starting to happen that is long overdue.  There was a  NYT’s article over the weekend with the hook – “why not chocolate on the med cart for people with Alzheimer’s??” – which of course, those of us in the field have been saying YES! to for years…  This in conjunction with the passage of the NAPA bill – and we are starting to see more serious conversation about supporting CARE techniques that are much more effective in treating dementia than the medications at this point.

And now the NYT’s caregiving blog is looking for responses on how people think we should direct the funds for caregiving support and research dollars.

We should let them know about meaningful, creative and educational programming.  About the incredible work in other countries to lessen stigma (rather than simply scare people to death and increase stigma).  There is SO much to let them know about…Please do!

 

 

Fresh back from New Orleans and the 2010 GSA conference (Gerontological Society of America).

As chair of the Humanities and Arts committee, I was running from place to place quite a bit – and I must say, amidst the chaos of the conference setting, there were some considerable moments of magic.

One was the Marketplace of Memory symposium on Saturday noon.  It featured some of my favorite folks in gerontology.  Jesse Ballenger addressed the history of pharmaceuticals; Danny George looked at trends in neuro-fitness and neurobics; Pia Kontos explored the workplace and expectations and interpretations of various levels of staff; Sally Chivers read images of dementia in film; and Keith Diaz Moore addressed the built environment.  BAtting clean-up was the amazing Janice Graham who really wove together the papers in an inspired summation that challenged us to examine the socio/cultural aspects of dementia that are in our power to change.

It was a small but engaged audience, and the discussion was as inspired as the presentations.  I hope we’re able to find an outlet for them – perhaps one that also invites visions for moving forward in practice and policy.

Thanks to all the panelists for inspiring the field!

« Newer Posts - Older Posts »

Follow

Get every new post delivered to your Inbox.