In the conclusion to Forget Memory, I imagine a day when people with dementia will engage in ACT-UP style activism. In the way that ACT-UP shaped AIDS/HIV research and funding, dementia activists might be able to shape a research agenda for AD that includes care as well as cure. They might be able to drive us toward a long term care policy in this country. Imagine that…
I saw an article today that shows the beginnings of this movement - the early stage dementia activists! Richard Taylor is of course setting the course for this movement as well.